Living With…Episode 011 Howard Bressler, Acute Promyelocytic Leukemia & Stevens Johnson Syndrome Survivor

 

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 Howard Bressler

Acute Promyelocytic Leukemia (APL) & Stevens Johnson Syndrome Survivor

Welcome to the show everyone! I hope you are all well!

My guest today was diagnosed with Acute Promyelocytic Leukemia (APL) in August 2000 at the age of 33. With the support of his wife and young daughters he started treatment for the disease, which included high-dose chemotherapy, and experimental treatment with arsenic trioxide. This treatment has since become part of the standard treatment protocol for APL patients. He has also suffered through bouts with Stevens Johnson Syndrome, which involves a separation of the skin’s dermis and epidermis layers.
He’s been practicing law in New York City for more than twenty years, dealing with toxic tort or chemical exposure, product liability and environmental actions.
His work has involved extensive research to determine if and how toxic exposure may cause illness. His own illness has helped him explain these issues in terms that judges, juries and non-scientists can understand.
He is the author of The Layman’s Guide To Surviving Cancer: From Diagnosis Through Treatment And Beyond.
In the book he uses his extensive research experience to explain the onset, progression and treatment of cancer in terms the reader will understand. Workplace rights and estate planning are also covered in the book.

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Living With…Episode 010 Richard London, Prostate Cancer & Parkinson’s Disease Survivor

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Richard London

Prostate Cancer & Parkinson’s Disease Survivor

My guest today is a cancer survivor, Parkinson’s patient, and a successful entrepreneur.

He’s an author, public speaker and host of the internet talk show Health Chat.  He lives the concepts he teaches.  Using the philosophy of his A Handbook for Life℠, keynotes and workshops.

He’s developed a thriving real estate investment business and started several computer companies, while overcoming multiple financial and physical obstacles.  He has two children and is happily married to his wife of 28 years.  He’s a third degree black belt and has practiced and taught martial arts for over 27 years.  He also has his commercial pilot’s license and was a major in the Civil Air Patrol.

At 19 he was in a life changing motorcycle accident that put him in and out of hospitals for ten months.  He has had a total of nine operations as a result of his accident.

In 2003 he was diagnosed with prostate cancer and is now an eleven year cancer survivor.  Two years after his cancer surgery he was diagnosed with Parkinson’s disease, but he has never let his spirits down.

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Living With…Episode 009 Steve Brown, Chronic Lymphocytic Leukemia Survivor and Ultra Athlete

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Steve Brown, Remission Man

My guest today is the creator of the popular blog remissionman.com
He was a standout college soccer player, receiving Most Valuable Player recognition and The Distinguished Alumni Award for his charitable work in his community.
Since 1987, he has racked up countless triathlons and multisport events of all distances including marathons, ultra marathons, and ironman triathlons with many top age group finishes.
In February of 2006, his life changed dramatically when he was diagnosed with Chronic Lymphocytic Leukemia (CLL) for which he underwent four rounds of chemotherapy.
He maintained his baseline fitness level, often running home from his treatments and quickly reached complete remission. Just 7 months after his diagnosis, “RemissionMan” crossed the finish line of his 8th career iron distance triathlon. (2.4-mile swim, 112-mile bike, 26.2-mile run).
His diagnosis drew him to the Leukemia and Lymphoma Society’s Team in Training program where he signed on as a Triathlon Coach.
He works closely with organizations such as The Leukemia & Lymphoma Society, Grassroot Soccer, and HEADstrong Foundation in promoting and supporting their events. He is also a member of Team Inspiration whose mission is to empower individuals living with cancer by developing exercise & wellness programs that improve their physical, mental, and spiritual quality of life.
If that isn’t enough, he is also an author of several books which talk about everything from fitness and triathlon, to his cancer diagnosis and his passion for living life to the fullest.
He has also been a featured guest on several radio, TV and internet broadcast programs.
In both 2012 and 2013 his leukemia returned. Again he underwent additional rounds of treatment and safely reached remission. And again, he used endurance sports as a weapon in his arsenal against cancer.

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Living With…Episode 008 Tara Notrica-Mast Cell Disease Survivor-Many Years of Illness & Misdiagnosis

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 Tara Notrica

Running For Rare Diseases

My guest today has endured a long journey of many years of illness and misdiagnosis.
Years of anaphylactic episodes for which she was treated episodically and sent on her way.
She saw countless specialists including, Allergists/Immunologists, Dermatologists, Rheumatologists, Gastroenterologists, Cardiologists, Endocrinologistics, Pulmonologists, Hematologists, Oncologists, Neurologists, Infectious Disease Specialists, and Clinical Nutritionists.
She was seen at some of the premiere medical institutions in the country and there were countless diagnoses & subsequent treatments. Being diagnosed with Severe Clinical Depression and Chronic Fatigue Syndrome angered her most.
Finally, in March 2011, after countless hours of diligent research, with her husband, she found a doctor who was a Mast Cell Disease expert. On April 1, 2011, she was diagnosed with Mast Cell Disease.
She had a bone marrow biopsy and according to the report, she had the signs /symptoms of myelodysplastic syndrome (MDS).
She continues to search out possible answers & treatment options for her illness & continues to raise awareness levels. She is a patient partner in the “Running for Rare Diseases” program that increases awareness levels of rare diseases and promotes diagnosis for patients.

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