Category Archives: Uncategorized

Living With…Episode 008 Tara Notrica-Mast Cell Disease Survivor-Many Years of Illness & Misdiagnosis

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 Tara Notrica

Running For Rare Diseases

My guest today has endured a long journey of many years of illness and misdiagnosis.
Years of anaphylactic episodes for which she was treated episodically and sent on her way.
She saw countless specialists including, Allergists/Immunologists, Dermatologists, Rheumatologists, Gastroenterologists, Cardiologists, Endocrinologistics, Pulmonologists, Hematologists, Oncologists, Neurologists, Infectious Disease Specialists, and Clinical Nutritionists.
She was seen at some of the premiere medical institutions in the country and there were countless diagnoses & subsequent treatments. Being diagnosed with Severe Clinical Depression and Chronic Fatigue Syndrome angered her most.
Finally, in March 2011, after countless hours of diligent research, with her husband, she found a doctor who was a Mast Cell Disease expert. On April 1, 2011, she was diagnosed with Mast Cell Disease.
She had a bone marrow biopsy and according to the report, she had the signs /symptoms of myelodysplastic syndrome (MDS).
She continues to search out possible answers & treatment options for her illness & continues to raise awareness levels. She is a patient partner in the “Running for Rare Diseases” program that increases awareness levels of rare diseases and promotes diagnosis for patients.

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Living With…Episode 007 Jim Skinner, Colon Cancer & Brain Tumor Survivor

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 Stories with a Purpose

Welcome to the show everyone. I hope you are all well.
My guest today is the host of the popular podcast Stories with a Purpose.
He’s the founder of the Smart Patient Academy and the author of Smart Patient Smart Money.
He was diagnosed with stage three colon cancer at age 42. He faced the most challenging waves of confusion, fear, and chaos of his life. He says he was clearly not ready to be pounded by the disease, or the unforgiving healthcare system.
The irony is that he is an expert in the health insurance field. You would think that if anybody could navigate the system well, it would have been him, but this was not the case.
So,  four years later when he was diagnosed with an unrelated but life-threatening brain tumor, he decided to take control of the process. He learned how to make the system work for him and that made a world of difference in his outcome and the quality of his life.

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Living With…Episode 006 Mel Majoros, Breast Cancer Survivor & Cancer Warrior

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The Cancer Warrior

Welcome to the show everyone. I hope you are all well.
My guest today is the host of the extremely popular podcast The Cancer Warrior on Empower Radio.

After her blog “The Cancer Warrior” was named one of the top cancer blogs in the country, she has taken her advocacy and inspiring outlook a step further with her weekly show on Empower Radio. Mel is also the producer & co-host of The Vic McCarty Show.

She was diagnosed with invasive ductal carcinoma breast cancer on September 18th 2007.  A lumpectomy soon followed on October 9th, two days after her 38th birthday.  She plays hockey and when she is not watching or playing she is advocating, speaking and informing people about cancer.

Because of her employment, she was not eligible for full health care coverage. Mel was only able to get some very basic coverage at her own expense. This resulted in her owing the hospital and doctors over $20,000.

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Living With…Episode 005 Paul Blais, Bladder Cancer Survivor

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Doubt The Doubts

My guest today is the host of two extremely popular podcasts, Doubt The Doubts and The Potter’s Cast.

He’s been an entrepreneur most of his life. He was a pastor and youth minister. He’s run several for-profit and not-for-profit businesses. Currently, he spends his time working on his podcast and helping entrepreneurs gain the skills that they need to realize their dreams.

He came to realize that his entrepreneurial success was not enough for him. Something was missing. He longed to be a writer and began keeping a blog of his ideas and speaking at local events. He realized this was his true passion.

Then in February of 2013, his whole life was turned upside down when he got the devastating news that he had an aggressive form of bladder cancer.

He decided it was time to stop saying “one day” to the things he wanted to do in his life. “One day” was finally here and he was going to do something about it.
He’s on a journey to inspire and help others get past their inhibitions and find a path to their dreams.

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Living With…Episode 004 Christina Soto, Hodgkin’s Lymphoma Survivor

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The Cancer GamePlan

Welcome to the show everyone. I hope you are all well.
My guest today is the host of the popular podcast The Cancer GamePlan.
She is a two-time survivor of stage IV Hodgkin’s Lymphoma.
She’s been through the challenges – emotional, physical, psychological and financial – that come along with a cancer diagnosis.
When she was just 32 years old her doctor uttered the three words you never want to hear, “YOU HAVE CANCER”.
She endured 16 months of treatment – chemotherapy, radiation and a stem cell transplant – before she was finally declared cancer free! She thought, finally the worst was now behind her, but the hardest part of her cancer battle was just beginning.
After a 3-week hospital stay for a stem cell transplant she found herself in incredible pain and on the brink of a full-on meltdown. She was in a constant state of panic and fear, which left her an emotionally-drained insomniac.
She came up with her own Cancer GamePlan to get her life back. She needed to address what was truly causing her fear, anxiety, physical pain, sadness, and confusion. She sat down and wrote out action plans for overcoming each of these 5 pain points.
She was finally on her way back to LIFE!
So she and her partner (Andres) decided to quit their jobs, sell everything they owned, start a business and travel the world.

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Living With…Episode 003 Sam Kimura, Severe Aplastic Anemia Survivor

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Sharing America’s Marrow

Welcome to the show everyone! I hope you are well!

My guest today is the co-founder of Sharing America’s Marrow, a nonprofit, grassroots movement to register 50,000 donors in all 50 states in 2015.
She was just 17 and an active high school lacrosse player in Louisville, Kentucky when she was diagnosed with severe aplastic anemia.
Her doctor told her that if she didn’t find a bone marrow donor, she would likely die within six months.
Nearly five years later, still no donor has been found. She carries on thanks to alternative drug therapy – she takes roughly 25 pills a day, but she still needs a donor to ensure her long-term health. When her big sister, Alex, proved to not be a donor, Alex went into action to help her sister.
Sharing America’s Marrow (SAM) is a nonprofit campaign started by my guest, her sister Alex Kimura and their friend Taylor Shorten.
In collaboration with the donor center Delete Blood Cancer, SAM hopes to dispel myths about bone marrow donation, educate the public on the importance of registration, and sign up as many potential bone marrow donors as possible.
Sharing America’s Marrow is traveling to all 50 states, with the hopes of finding a donor for the thousands of patients fighting blood cancer and other diseases. Because young people are the ideal donors for bone marrow transplant, the SAM team is focusing their efforts on college campuses across the country.

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Living With…Episode 002 Rick Ochoa, Chronic Lymphocytic Leukemia Survivor

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Laughing With Cancer Podcast

Welcome to the show everyone. I hope you are well!

My guest today is one of those people who is larger than life.
I’m so happy to have him on the show.
He’s the host of Laughing With Cancer Podcast.
He’s a father, grandfather, an Elvis impersonator & a cancer survivor.
He was diagnosed with Chronic Lymphocytic Leukemia (CLL) on Valentines Day 2003.
He worked in nuclear power plants & in mines where he was exposed to radiation & benzene, but his doctors told him these things were not the cause of his cancer.
Like many, he suffered through the 5 stages of grief.
He’s had his good days & bad days and at one time even contemplated suicide.
Interestingly, he credits a podcast with saving his life.
He was fighting obesity and diabetes and decided to make changes in his lifestyle, and his diet, he quit smoking and started exercising.

His cancer journey has lead him to a healthier lifestyle, enjoying life with a positive outlook and most of all laughing his way to good health.

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Living With…Episode 001 Vinnie Tortorich, Leukemia Survivor

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 Angriest Trainer Podcast

Welcome to the show everyone! I hope you are well!

My guest today is the host of the extremely popular health & fitness podcast The Angriest Trainer.
He’s a former model.
He’s Hollywood’s go to guy for health & fitness.
He’s the personal trainer to the stars.
He doesn’t eat sugars or grains.
He’s an endurance athlete.
He has six-pack abs.
He’s ripped.
He sleeps with a Bond Girl.
He’s the best selling author of Fitness Confidential.
He’s developed his own line of vitamins.
He does shots of Villa Cappelli olive oil.
And yes most importantly, he’s a Leukemia survivor.

Why is he so angry? Stick around we’ll find out.

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